I wanted to let you know about my daughter Bailey, who has a condition called Neurofibromatosis. This condition affects the nervous system AND every cell in the body. It causes tumors to form inside and outside of the body, leading to severe problems. For my daughter, the tumors formed in her brain. While she has severe learning challenges, she has an understanding that goes beyond comprehension! She inspires me everyday and helps me realize that there are far worse things in life, and that we are a truly blessed family!
Thank you so much for helping this mama be one that focuses on the family. I stay home with my (gulp) SIX kids, teaching them and raising them to be strong and confident people.
We spend every Wednesday (all day) at the Children's Hospital, with Bailey hooked up to a port IV, receiving chemotherapy for a nasty little tumor caused by NF.
This life is a short one....and all I can hope, is that I am doing all I can do, to make it the best life possible!
All My best
Kristi
Here is Bailey's Blog, she keeps, to journal her way through the complications she experiences: www.achildsviewintonf.blogspot.com
